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AUSTRIA
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Osterreichische Gesellschaft fur Muskelkrank,
Wahringer Gurtel, 18-20,
Neurolog Univ. Klinik,
A-1090 WIEN.
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Tel:(43) 1-40400-31-12
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Fax:43) 1-40400-31-41
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Email: 20muskelges@akh-wien.ac.at |
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Contact Person(EYO) : Petra Hromadka
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BELGIUM
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Association Belge contre les MaladiesNeuromusculaires (ABMM),
Rue de Blanc Bois, 2,
1360 PERWEZ.
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Tel:(32) 81-655-885
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Fax:(32) 81-655-885
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Email:
ABMM@village.uunet.be
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Contact Person :Frida Baudoin
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Contact Person(EYO) :Alex Djuran
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BULGARIA
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Bulgarian Neuromuscular Diseases Association (BNDA),
182, Rakovski Street,
SOFIA.
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Tel:(359) 2-652-188
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Fax:(359) 2-510-992
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Email:
vladial@tusk.icn.bg
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Contact Person :Violeta Antonova
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Contact Person(EYO) :Vladimir Vladimirov
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CROATIA
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Savez Drustava Distroficara Hrvatske,
Nova Ves, 44,
10000 ZAGREB.
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Tel:(385) 1-466-6849
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Web Address:
www.sddh.hr |
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E-mail:
sddh@zg.t-com.hr
Contact Person:
Tomislav Goll
president of Association
Contact Person: Marija Sostarko |
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CYPRUS
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Muscular Dystrophy Association Cyprus
P.O. Box 23462,
1683 Nicosia
CYPRUS
Tel: +357 22 392610 / +357 99 550015
Fax: +357 22 392719
E-mail:
mda@cing.ac.cy
President:
Mr. Eliofotos Kakoullis
Contact Person:
Ms. Rita Prodromov |
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CZECH REPUBLIC
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Asociace Muskularnich Dystrofiku VCR
Petyrkova 1953/24
PRAHA 4 - Chodov
148 00
CZECH REPUBLIC
Tel: +420 272933 777
Fax: +420 292933 777
E-mail:
amd@cmail.cz
Website:
http://www.md-cz.org
President: Stanislava Redlova
Contact Person: Jitka Kacirkova
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ESTONIA
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Eesti Lihasehaigete Selts
Madara 37-2, 10613 Tallinn
Tel:
(372) 5238358
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SERBIA AND MONTENEGRO
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MUSCULAR DYSTROPHY
ASSOCIATION OF SERBIA & MONENEGRO
Radomira Vujovica
br. 3,
11000 Beograd,
SERBIA & MONTENEGRO
Tel: +381 11 360
55 09
Fax: + 381 11 652
389
E-mail:
cilsrbija@digit.co.yu
President: Gordana
Rajkov
Contact Person:
Gordana Rajkov |
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FINLAND
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Lihastautiliitto
ry.
The Finnish
Neuromuscular Disorders Association
Läntinen
Pitkäkatu 35,
20100 TURKU
FINLAND
Tel: +358+2+273
9700
Fax: +358+2+273
9701
E-mail:
lihastautiliitto@lihastautiliitto.fi
Website:
www.lihastautiliitto.fi
President: Mr.
Jukka Sariola
Contact Person:
Mrs. Eila Ahokas |
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GERMANY
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Deutsche
Gesellschaft fur Muskelkranke e V (DGM)
Im Moos 4
79112 FREIBURG
GERMANY
Tel: +49 7665
94470
Fax: +49 7665
944720
E-mail:
dgm-fr@t-online.de
Website:
www.dgm.org
President: Fran
Kreiling, Anne
Contact Person:
Horst Granter |
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GREECE
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Muscular Dystrophy Association Hellas
'Mavromatteon 11
106 82 Athens GREECE
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Tel:+ 301 8256834 & + 301 8256835
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Fax:+ 301 8210098
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Email:
mdahellas@otenet.gr
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HUNGARY
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Hungarian
Neuromuscular Disorders Association
C/o
Dr.
Jozsef Thiesz
Templom
u.6
H-9200 Mosonmagyarovar
Hungary
Tel: +36 96 576479
Fax: +36 96 217300
E-mail:
mioe@mailbox.hu
Contact Person:
Dr.
Jozsef Thiesz |
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IRELAND
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Muscular
Dystrophy Ireland (MDI)
Carmichael Centre
Coleraine House
Coleraine Street
DUBLIN 7
IRELAND
Tel: (353) 1 872
1501 / (353) 872 3826
Fax: (353) 1 872
4482 / (353) 1 873 5737
E-mail:
info@mdi.ie
Website:
http://www.mdi.ie
Contact Person: Judy
Windle |
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ITALY
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Unione
Italiana Lotta alla Distrofia Musculare
(UILDM)
c/o
EOS srl, Via Vergerio, 19/3,
35126
Padova
ITALY.
Tel.
049/8025248
Fax
049/8025249
E-mail:
redazionedm@eosservice.com
Web site:
http://www.uildm.org
President: Enrico
Lombardi
Contact Person:
Stefano Borgato |
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KOSOVA |
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Pal
Palucaj
No.
40,
Prishtina,
KOSOVA
Tel:
+381 38 540 294 / +377 44 332 480
E-mail:
gimi_mda@yahoo.com
President: Agim Vatovci
Contact Person: Agim Vatovci |
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MALTA
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Muscular
Dystrophy Group of Malta
4, Gzira Road,
Gzira GZR 04
MALTA
Tel: +356 21
346688
Fax: +356 21
318024
E-mail:
mdg@mdgmalta.com
Website:
http://www.mdgmalta.com
President: Denis
Azzopardi
Contact Person:
Rita Borg |
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LITHUANIA
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Lithuanian Neuro-muscular
Association
Prancuzu 59
– 13
Lt
– 3035
Kaunas
LITHUANIA
Tel: +(370) 37
348413
E-mail:
jurgitag@takas.lt
President:
Jurgita Goštautaitė
Contact Person: Jurgita
Goštautaitė |
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NORWAY |
Foreningen for Muskelsyke
Bergsallčen 21, 0854,
Oslo,
Norway
Tel: +47 23
21 54 50
Fax:+47 23 21
54 69
E-mail:
ffm@ffm.no
Web Site:
www.ffm.no
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REPUBLIC OF MOLDOVA
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Moldavian
Myopathy Association
2001, str.
Bulgara 24/B2
Chisinau
REPUBLIC OF
MOLDOVA
Tel:(373) 2 26 26
87
E-mail:
vtonu@mednet.md
Contact Person:
Maria Tonu |
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ROMANIA
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Asociatia Distroficilor Muscular din Romania (ADMR),
Str. Bailor, 197,
4017 - Vilcele,
Jud. COVASNA.
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Tel:(40) 67-35-26-70
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Fax:(40) 67-35-26-70
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Contact Person :Stelian Schipor
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Contact Person(EYO) :Mangaru Evelin
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SLOVAKIA
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SLOVENIA
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Drustvo Misicno
obolelih Slovenije
Linhartova 1- III
61109 LJUBLJANA
SLOVENIA
Tel: (386) 61 172
0500
Fax: (386) 61 132
8142
E-mail:
info@drustvo-distrofikov.si
President:
Boris Šuštaršič
Contact Person:
Ivo Jakovljevic |
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SPAIN
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Association Espanola de Enfermedades Musculares (ASEM),
Gran Via de les Corts Catalanes,
562 pral 2a,
08011 BARCELONA.
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Tel:(34) 93-451-6544
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Fax:(34)93-451-6904
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Email:
asem15@support.org
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Web Address:
http://www.asem-esp.org
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Contact Person :Marta Maristany
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Contact Person(EYO) :Juan Manuel Benajes
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SWEDEN
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Rorelsehindrade Barn och Ungdomar (RBU),
Box 6607,
113 84 STOCKHOLM.
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Tel:(46) 8-736-2600
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Fax:(46) 8-301-410
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Email: mail@riks.rbu.se
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Web Address:http://www.rbu.se/
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Contact Person :Christina Mandley
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Contact Person(EYO) :Anna Hallgren
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SWEDEN
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Neurologiskt Handikappades Riksforbund (NHR),
Box 3284,
103 65 STOCKHOLM.
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Tel:(46) 8-677-7010
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Fax:(46) 8-241-315
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Email: nhr@nhr.se
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Contact Person :Bitten Ericcson
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Contact Person(EYO) :Camilla Soderlund
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SWITZERLAND
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Association de la
Suisse Romande
et Italienne contre les Myopathies (ASRIM)
Chemin de la
Traverse 12
P O Box 179
1170 AUBONNE
SWITZERLAND
Tel: +41 21 808
74 11
Fax: +41 21 808
81 11
E-mail:
asrim@asrim.ch
Website:
http://www.asrim.ch
President: Mr.
Yves Bozzio
Contact Person:
Lilo Piguet |
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SWITZERLAND
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Schweizerische
Gesellschaft fur Muskelkranke (SGMK)
Kanzleistrasse 80
8004
ZÜRICH
SWITZERLAND
Tel: (41) 1 245
80 34
Fax: (41) 1 245
80 31
E-mail:
sgmk@sgmk.ch
Website:
http://www.sgmk.ch
Contact Person:
Beatrice Obrist |
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THE NETHERLANDS
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Vereniging
Spierziekten Nederland (VSN)
Lt. Gen. van
Heutszlaan 6
3743 JN BAARN
THE NETHERLANDS
Tel: (31) 35 54
80480
Fax: (31) 35 54
80499
E-mail:
vsn@vsn.nl
Website:
http://www.vsn.nl
Contact Person:
Ria Broekgaarden |
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UKRAINE
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Ukrainian Muscular Dystrophy Association (ERB),
Shevchenka str., 55/11,
290039 LVIV.
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Tel:(380-322) 330-047
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Email: myopatic@mail.lviv.ua
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Contact Person :Victor or Alla Mohyla
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